An operational concept for a European Cancer Patient Digital Centre : EU missions : cancer

The European Cancer Patient Digital Centre (ECPDC) aims at increasing the quality of life of cancer patients and survivors, which is often characterised by a lack of understanding or insufficient consideration of patient needs during and after the treatment. In 2022, the European Commission awarded contract RTD/2022/MVP/0012 to the Berlin Institute of Health at Charité for delivering a study on an operational concept for a European Cancer Patient Digital Centre. In this study a blueprint for implementing an ECPDC is developed considering existing infrastructures and further initiatives, along three different complementary concepts that are coherent with the goals of the EU Mission on Cancer and Europe's Beating Cancer Plan. Concept 1 covers a novel approach to present cancer information in a standardised way for citizens and patients. Concept 2 covers personalised access to and sharing of personal cancer related data in a uniform and interoperable way in all Member States. Concept 3 combines the results of the first two concepts towards a novel sustainable way to make the ECPDC portal the one stop agency for all citizens and patients dealing with cancer, facilitating co‐decision in treatment and active participation in research.