Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study
| Year of publication: |
2012
|
|---|---|
| Authors: | Linertová, Renata ; Serrano-Aguilar, Pedro ; Posada-de-la-Paz, Manuel ; Hens-Pérez, Manuel ; Kanavos, Panos ; Taruscio, Domenica ; Schieppati, Arrigo ; Stefanov, Rumen ; Péntek, Márta ; Delgado, Claudia ; Graf von der Schulenburg, Johann-Matthias ; Persson, Ulf ; Chevreul, Karine ; Fattore, Giovanni ; Worbes-Cerezo, Melany ; Sefton, Mark ; López-Bastida, Julio |
| Published in: |
Health Policy. - Elsevier, ISSN 0168-8510. - Vol. 108.2012, 1, p. 19-26
|
| Publisher: |
Elsevier |
| Subject: | Rare diseases | Delphi approach | Health-related quality of life | Burden of illness |