A proposal on cancer data quality checks : one common procedure for European cancer registries

The report was the object of discussion and final revision at the third workshop, and final agreements were reached concerning case definition, variables and their format and data quality control list. This document is the result of a collabora- tive project between the ENCR, the JRC, the Working Group on Cancer Data Quality Checks and European cancer registries. The final outcome of the project was an ENCR- endorsed recommendations document, to be issued and presented at the 2014 ENCR Scientific Meeting and General Assembly, 12-14 November 2014, at JRC-Ispra. This report focuses on case definitions and variable format quality checks and internal consistency within and between collected variables. The proposed quality checklist allows the identification of: impossible codes or code combinations, unlikely codes or code combinations and possible but very rare code or code combinations. Finally, the list of drugs used for chemother- apy, hormonal therapy, targeted therapy, immunotherapy and other therapies used in cancer treatment was revised and included in the Appendices: the list of drugs con- tains the Anatomical Therapeutic Chemical (ATC) code as well as the generic and trade names. With respect to the first version (1.0), in this updated version (1.1) of the report, the quality checklist of warnings for multiple primary malignant tumours (MPMT) according to the current International Rules for Primary Cancers published in 2004 have been added (Chapter 4). Moreover, Table 6 (Valid combinations for behaviour and topography/morphology) in the previous version of the report (1.0) has been discarded.