The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research

Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.

MoreLess

Year of publication:	2012-05
Authors:	Rabeharisoa, Vololona ; Callon, Michel ; Filipe, Angela Marques ; Nunes, João Arriscado ; Paterson, Florence ; Vergnaud, Frédéric
Institutions:	Centre de Sociologie de l'Innovation (CSI), MINES ParisTech
Subject:	patients’ organizations \| rare diseases \| France \| Portugal \| hybrid collective model \| delegation model \| singularization-generalization

More details

Extent:	application/pdf
Series:	CSI Working Papers Series.
Type of publication:	Book / Working Paper
Notes:	Number 026 41 pages
Classification:	Z10 - Cultural Economics. General ; I10 - Health. General
Source:	RePEc - Research Papers in Economics

Persistent link: https://www.econbiz.de/10010837054