Patients?s organisations working in the field of genetics are facing a challenge: despite their structural differences, they have to organise themselves in order to rationalise their activities, namely by gathering together and uniformising their procedures. Moreover they have to deal with the...

This is an expanded English summary of a French report that was prepared for the French Council of Economic Advisers (Conseil d'analyse économique). The full text French report, "Les risques majeurs et l'action publique", can be downloaded from the Council's website or from the last author's...