Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complex or rare diseases by improving diagnosis and...

The overall objective of this study was to propose recommendations for improving the current level of information provision to patients by National Contact Points (NCPs). The research methodology used in this study consisted of: literature review, analysis of legal texts, website analysis,...

Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complex or rare diseases by improving diagnosis and...

Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complex or rare diseases by improving diagnosis and...

This report and the accompanying Staff Working Document describe the activities of the EU's networked and collaborative system for monitoring and controlling the safety of human medicines and is focused on activities since the start of operation of new legislation in 2012 until the end of 2014,...

This report describes the activities of the networked and collaborative system for monitoring and controlling the safety of human medicines in the EU over a period covering three years following the start of operation of new European legislation designed to improve that system. While the...

This report describes the activities of the networked and collaborative system for monitoring and controlling the safety of human medicines in the EU over a period covering three years following the start of operation of new European legislation designed to improve that system. While the...

Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complex or rare diseases by improving diagnosis and...

This report aims to provide an overview of patients' rights in all EU Member States, Norway and Iceland by mapping national patients' rights legislation, soft-law, structures and enforcement procedures ensuring the rights of patients. The mapping exercise was performed from January to September...

This report aims to provide an overview of patients' rights in all EU Member States, Norway and Iceland by mapping national patients' rights legislation, soft-law, structures and enforcement procedures ensuring the rights of patients. The mapping exercise was performed from January to September...