Showing 1 - 10 of 37
The article documents and analyzes patients organizations- and groups of activists’ “evidence-based activismâ€, and the compound dynamic interplay between politics of illness and politics of knowledge it entails in the four condition areas studied: ADHD, Alzheimer, rare diseases...
Persistent link: https://www.econbiz.de/10011162966
Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.
Persistent link: https://www.econbiz.de/10010837054
Transcribes a dialogue on the evolution of actor-network theory.
Persistent link: https://www.econbiz.de/10005081423
Analyses the role of European patients’ organizations in the process of Europeanization of healthcare policies by exploring the types of organizations constituted by European patients’ organizations and the form of activism they develop.
Persistent link: https://www.econbiz.de/10010693412
Examines how groups representing children with Attention Deficit Hyperactivity Disorder (ADHD) in France and Ireland engage within this contested medical domain, and challenges the frequently made association between the process of medicalisation and de-politicisation.
Persistent link: https://www.econbiz.de/10010607818
How, and to what extent, do patient organisations renew traditional forms of social participation and protest? This question is examined, drawing on a socio-historical case study of the Association Française contre les Myopathies--French Muscular Dystrophy Organisation (AFM). The originality of...
Persistent link: https://www.econbiz.de/10008615867
The past few decades have witnessed the increasingly active participation of patient organisations in research activities concerning them. They contribute substantially to the funding of scientific and clinical research. More importantly, certain patient organisations take strategic decisions...
Persistent link: https://www.econbiz.de/10008568858
Provides original sociological research on the development of consumer credit scoring in the United States and its links to subprime mortgage finance.
Persistent link: https://www.econbiz.de/10004970264
Presents a case study on the Arizona Stock Exchange, with an emphasis on how exchange automation altered the definition of the market.
Persistent link: https://www.econbiz.de/10004977838
Examines the changing roles of science exhibitions from places of 'cold' science, where secure, closed and fixed knowledge is communicated, to places that increasingly engage with 'hot', controversial research and open debates.
Persistent link: https://www.econbiz.de/10004984409